Testing, Testing 1 2 3

This week we had a few doctor visits and lots of sickness.  All 5 of us (besides Jaron, miraculously) got sick.  I ended up with walking pneumonia (thank you Lord for antibiotics) and everyone else had coughs, runny noses, and a fever here and there.  We are still fervently praying that Jaron does not get any of our colds because pneumonia is the #1 concern for baby's with MDS.  It is not easy to keep 3 loving (sniffly) siblings away from their favorite baby brother!

On Monday, Jaron got a renal ultrasound to check his kidneys and bladder and then went directly over to the audiologist for his routine hearing screen.  Then on Tuesday morning we were back at St. Vincent Hospital for an ECHO (heart ultrasound).  They took over 100 pictures of his little tiny heart.  So far, I haven't heard the results of the two ultrasounds.  The genetics doctor referred us to them because typically with MDS they have problems with their heart and kidneys.  We were surprised to find, after 2 1/2 hours in audiology, that Jaron has moderate hearing loss.  In the next few months he will need to be fitted with hearing aids.  I don't know if this has anything to do with the syndrome or not.  Its sad that all this time he hasn't really heard much of what we say.  And its hard to know how loud we need to talk to him in order to be heard.  Hopefully Early Intervention specialists will soon be visiting our home to help us understand what we can do.  This coming Tuesday he will see an ophthalmologist, then I will let you know how his eyes are.