Thursday, July 8, 2010

Because Jaron is not gaining weight and he has had this cough for 4 weeks (possibly due to aspiration), the doctor's are starting to talk about a g-tube (=A gastrostomy tube that leads directly into the stomach through the abdomen to feed and give medications).  He will have a swallow study on Monday to determine if he is aspirating his formula.  Basically, they will put a substance in his formula that shows contrast on an x-ray machine.  While he is drinking his bottle, a speech pathologist and x-ray tech will watch where inside his body the formula travels.  If it goes down the proper pipe then great, but if some of it gets down his breathing tube and into his lungs then it is called aspiration.  If he is aspirating at all, they will admit him into the hospital immediately and prepare to put in a g-tube within the week.  Hopefully this is not the problem and we can continue to feed him by mouth.  But if he doesn't start taking more at each feeding and gaining weight, we will see a GI doctor and consider the g-tube anyways.  This is very scary for Brian and I to even consider but we want to do what is best for Jaron.  

Also, tomorrow Jaron is going to be sedated to get an MRI.  This will give the neurologist a better idea of how severe of lissencephaly (smooth brain) he has.  We'll let you know how these next few appointments go...

1 comment:

Stephanie said...

Been praying for you guys during this scary time! I know the Lord is surrounding you with His peace and showing you His power! Know that even a simple change like a g-tube can make for a "different" baby...a happy and cough free one especially :) Love you guys!