Day 4 at Emanuel

The result of the pH probe study is that the acid reflux medicine he is already taking is helping control the acidity.  The GI doctor is recommending we try Prilosec instead of Prevacid and remove Zantac from the medication lineup.  The next thing to try is Regalin, which helps the stomach empty quicker to hopefully alleviate the pain he is still having during and after his feeds.  The GI doctor also determined that he will need the least invasive gastrostomy tube, which can be done in a small procedure with a one night hospital recovery.  We are scheduled for that procedure on Monday at noon.  Hopefully we will be released to go home tomorrow so that we can all get some much needed rest this weekend before the tube goes in.  He will go home for now with a nasogastric tube which he has been using since Monday evening.  I will need to have the pump sent to my house and learn how to run it before we leave.  I believe it is the same pump we will use for the g-tube feedings as well.  It's going to be a whole new world.  We have been reassured by many different people that feeding will go much smoother and that a g-tube is no big deal.  I am looking forward to not having the stress of force feeding him by mouth especially when he really doesn't want it and he chokes on it or cries.  I just want him to eat safely and grow!  Thanks for your prayers!