Hannah has the gift of compassion. Any time Jaron starts to squirm or cry she runs to his side and informs me of the problem. She even "knows" when his tummy hurts, he needs a diaper change, he's hungry, he's "doing seizures"... She comforts him by rubbing his head when he cries. She gives him his praying Precious Moments angel when he's having a seizure. She shares her beloved blanket when he is sleeping. And she's always there with a cloth to clean the bubbly drool from his chin. Her favorite job is carrying the backpack that holds his feeding pump to the car when we go out. If he is eating, she has to be very careful to stay close to his car seat while we walk out to the car, so that she doesn't pull the tube that is attached to his stomach.
Hannah playing with the backpack
Lukas knows how to prepare Jaron's feeding tube and he wants to do it every morning. This requires filling the bag that hangs on an I.V. pole with his formula, priming the formula through the tube, connecting the cassette that regulates the flow into the pump, setting the pump with the correct rate and dose (digital controls), plugging the tube into the extension that attaches to Jaron's belly, unlocking the tube and pressing start. He's got it down! When a feeding is done (1 hour, 4 times a day) the pump beeps and all 3 kids fight over who gets to turn it off. I love all this help. They could train a nurse at the hospital :)
The feeding tube and pole
Haylee likes to pick out Jaron's clothes and hold him in the chair. She's also very patient to give him a nebulizer treatment sometimes when I am in a hurry to go somewhere. This requires holding the blowing mechanism close to his face and plugging a hole so that all the medicine is diffused into the air he is breathing. This takes about 5 minutes. She also likes to give him his medicine in his tube, with help.
Haylee holding Jaron in his chair
Lukas giving a nebulizer treatment
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